Rare Diseases


FOR EACH DISEASE, TRIO IS GUIDED BY A HIGHLY RESPECTED COMMITTEE OF KEY OPINION LEADERS THAT PROVIDE INVALUABLE INSIGHT INTO DRUG AND DISEASE TOPICS THAT, IN COLLABORATION WITH TRIO HEALTH, PUBLISH ON REAL WORLD PATIENTS.

The Trio Health and NORD Collaboration


The National Organization for Rare Disorders (NORD), the country’s leading voice for the rare disease patient community, is collaborating with Trio Health to leverage its innovative platform to monitor real-world patients. This unique insight will allow physicians, drug manufacturers, regulatory agencies and advocacy organizations to better serve and improve patient outcomes.

Publications


2018

The Opsoclonus Myoclonus Syndrome (OMS) Registry: A Vehicle to Better Understand the Natural History and Experience of OMS Patients

Symptoms and Diagnosis of Opsoclonus Myoclonus Syndrome (OMS): Early Data from the OMS Registry

Treatment Utilization by Patients with Opsoclonus Myoclonus Syndrome (OMS): Insights from the OMS Registry

NORD RareCare® Assistance Programs: Helping the Rare Disease Community Access Diagnostics and Care

The Pemphigus-Pemphigoid Registry: Real-World Diagnostic and Treatment Patterns

The Pemphigus-Pemphigoid Registry: First Report of Patient Quality of Life Measures

The Pemphigus-Pemphigoid Registry: A Platform to Improve Understanding and Advance Care

The PKU Patient Registry: A Step for Better Disease Awareness and Improved Patient Outcomes

The PKU Patient Registry: Understanding Diagnosis and Medical History of Patients with PKU

The PKU Patient Registry: Evaluating Treatment Paradigms of Patients with PKU